Hello folks, 13 years ago I had a porcine valve replacement and all went well, I had also had a single bypass, nerve block, pace maker and Aortic graft put in at the same time but this year the valve reached the end of it’s useful life. A person undergoing open heart surgery will need to stay in the hospital for 7 – 10 days. I was told I had a congenital heart problem at 63 years of age. I had the procedure Dec1 and honestly have not had one moments pain. Exercising by treadmill walking (3-3.5 Miles) 3 or 4 days each week in addition to 4 days/week rehab. Also, I heard doctor said that artificial Valve (made from cow) last only 10 to 15 years. Are you on pain killers? He was exceptional and I needed to find out more about my heart. Besides the actual procedure, at least one hour before and one hour after the surgery … I did have 2 stents put in 12.5 years ago when I was 47 and that felt devastating to me at the time, but yeah, it was really nothing by comparison! By age 60 I was referred to a cardiac surgeon and was scheduled for surgery. Kiran Musunuru is an associate professor of cardiovascular medicine and genetics at the Perelman School of Medicine at the University of Pennsylvania, where he has made outstanding research contributions in the use of gene editing to study and treat cardiovascular disease. I will say. Even my fatty liver condition has reversed. That was a mistake. BOOM! Basically, bacteria was growing all through my heart, it destroyed the tricuspid valve and aortic valve as well as damaging the upper electrical node and stretching my heart muscle to nearly twice it’s normal size. 30 years? Meghan Lane-Fall, MD, MSHP, FCCM is a physician-scientist committed to the provision of safe, effective patient care. Ps. Vince, I’m sorry you have been going through this since you are 7. its been 2 months now after the operation, healing is well on its way, i just feel tired and sometimes out of breath and this is because of anxiety. No one one warns about it, just kind of happens. I havent got a lot of faith in this visit. Dana Farber Cancer Institute/ Brigham and Women’s Hospital. Hopefully, I will feel better. Things get better but, slower then anticipated. I needed both valves replaced and I have been given an internal pacemaker. So here I go backwards to Cardiologist #2 and he told me I needed a stent put in. I believe it just takes lots of time. Section of Cardiology/Tulane University Heart & Vascular Institute. After a load of scans, my doctor spotted I had an ‘enlarged heart’. BP is controlled through drugs and am taking a blood thinner. Good Luck to All Lloyd. That was my mistake. On the other hand, I learned many years ago, that we are not in the world for “me, me, me” and that we truly not our own but bought with a very steep price, so those are no my decisions to make. The angiogram showed triple blocks. I am a practicing architect and I love what I do. In addition to her academic duties, she provides genetic counseling services at Howard University Hospital for a variety of referral reasons, in areas including prenatal (primary), pediatric, and adult genetics. Her experiences with advanced and early heart disease led her to advocate for awareness by sharing her personal story. In 69 in pretty good shape before this. I do feel tired and weak. Fatigue can come and go. Do take care.Many thanks. Ride my bike daily, went on 8 kilometer trail hike with a friend the other day. My recovery has been ok physically – the usual chest soreness and subsequent twinges and twitches around the site of the operation – I’m at the gym now 3 days a week for an hour of intensive aerobic work – heart rate I control to peak at 130 bpm. And shortly after pericarditis. I still have a cough which is annoying, Don Director, Perelman School of Medicine, University of Pennsylvania Hugging my wife, watching the sun rise and set, a cool drink of water, a wave from a friend. CAT scan revealed vertebral basilar insufficiency but medical opinions are mixed. He has published >770 peer reviewed scientific papers. It’s been quite a journey. A lot of people told me it will take a year before some of the chest pain subsides. I am 54 yrs old and just had OHS – triple bypass! It will feel uncomfortable when you cough, laugh or sneeze. Typically fatigue improves as the recovery period progresses. I have fortunately found quite a lot of useful info online. I was relieved to see someone else still had this going on. In 1981 as a medical intern, Rob saw his first FH patient. I put myself at about 85% of I had Aorta Graft replacement and also Aorta valve replacement with Titanium St.Jude’s valve. I acknowledge with all the complications & now ongoing health issues I never had before, there has got to be a reason why. However, the biggest challenge to date has been spells of dizziness and light-headedness, referred to as Presyncope episodes. While I am exercising 5-6 days a week, can keep up with 20 year olds on the basketball court and can steal bases in my baseball league, routine breathing is still a daily challenge. Dr. Musunuru received his M.D. Keep loving him and keep praying for him and those near to him. He was, from 1985 to 2001, the President of the University of Chicago Hospitals. My chest still bothers me and leg is swollen a lot. When I think that the pig valves are only good for ten years on an average, I get depressed. Will this pain go away ? Chloe Villavaso, MN, APRN, ACNS-BC, CMC, FPCNA is an individual with FH and Adult Health Clinical Nurse Specialist. He has been elected to the National Academy of Medicine and the American Academy of Arts and Sciences. I’m just tired of the whole thing…, Hi hope this finds everyone doing really well I just had surgery on April 4 of this year . I went back to work 2 weeks ago. The Meds have me constipated, so I take a stool softener daily, and a laxative weekly. We have partnered with patients and organizations like the CDC, ACC and AHA to increase public health awareness of FH and have established and currently manage a national FH registry called “CASCADE FH.”, Massachusetts General Hospital This is priceless, wonderful help! A combination of pain, numbness & pressure can be expected for a while to the chest area. month for an evaluation. But plans change! I went to my neighbours who offered to help, organised my funeral, someone to take my dog, clean my unit and give all my stuff to charity. Duquette is currently the Genomics Coordinator at the Michigan Department of Health and Human Services. My surgeon thinks I’m doing great and my cardiologist thinks everything is fine. I'm in school and that was our plan a long time ago is I would work when our son graduated. Went to an ENT to check my esophagus……It was fine, however he expressed that when fluid builds like this, your lung is not expanding well. I happy to say that this was a success and my left atrium has shrunk almost back to normal and ejection fraction is almost normal.i am walking 5 miles daily. associate professor of cardiovascular medicine and genetics. I have had 4 surgeries now, 3 when I was in my late 20’s and my fourth was 1 year ago, Right as I was turning 50, the Aortic tissue valve that was put in 20 years ago finally stopped working , calcified along with a portion of my descending Aorta. This still puzzles me how the heck did a CABG effect my walking and change my vision so much. He holds the Wolfe Distinguished Medical Research Chair, the Edith Schulich Vinet Chair in Human Genetics and the Blackburn Chair in Cardiovascular Research. I have acute pain in my right side just in line with my right Armpit. He means well, but it is difficult for now. I highly recommend rehab not just for the rehab but, the knowledge you get. I have stopped smoking and drinking alcohol. I’m frightened, anxious, tired, no taste ….. What are other peoples’ experience? Heart valve replacement is a type of open-heart surgery/operation. I’m trying to go back to my old routine but even the lightest things like sweeping or doing laundry takes all my air and I have to stop and rest until I can breathe normal again. I take 1 x aspirin, 2 x Furosemide a day (not 8 as he prescribe and no Spiractin 25), I take half a Bisoprolol and 1 x Atorvastatin a day. Memory loss means I wanted to do something and I will call the related person in my office, but suddenly forget for what I called hahaahah……. Just doing little things like getting out of bed without help sometimes or making coffee is a challenge. The difficulty sleeping throughout the night and the subsequent fatigue I constantly wrestle with.
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